Journal article
Defining the supportive care needs and psychological morbidity of patients with functioning versus nonfunctioning neuroendocrine tumors: Protocol for a phase 1 trial of a nurse-led online and phone-based intervention
L Guccione, K Gough, A Drosdowsky, K Fisher, T Price, N Pavlakis, M Khasraw, D Wyld, D Ransom, G Kong, M Rogers, S Leyden, J Leyden, M Michael, P Schofield
Jmir Research Protocols | JMIR PUBLICATIONS, INC | Published : 2019
DOI: 10.2196/14361
Abstract
Background: Online information resources and support have been demonstrated to positively influence the well-being of people diagnosed with cancer. This has been explored in past literature for more common cancers; however, for rare cancers, such as neuroendocrine tumors (NETs), there are little to no support or resources available. Despite relatively good prognoses, the quality of life (QoL) of patients with NETs is significantly lower compared with samples of mixed cancer patients and the general population. Patients with NETs also typically report unclear and difficult pathways of disease management and treatment, given the heterogeneity of the diagnosis. There is a vital need to improve ..
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Awarded by Victorian Cancer Agency
Funding Acknowledgements
This study was funded by the Victorian Cancer Agency-grant number ECSG14002. The funding body had no role in the design of the study, and the funding body will not have any role in the collection, analysis, and interpretation of data or in the writing of this or subsequent manuscripts.